Links and information on organisations which operate Europe-wide and Internationally
BBMRI (Biobanking and Biomolecular Resources Research Infrastructure)
www.bbmri.eu
A pan-European and internationally broadly accessible research infrastructure, and network of existing and new biobanks and biomolecular resources.
Biomedinvo4all
www.biomedinvo4all.com
Website created by EGAN to provide information on genetic, biomedical, pharmaceutical and clinical research for the development of therapeutic, preventive and diagnostic tools.
Clinical Trials.gov
clinicaltrials.gov
A service of the U.S national Institutes of Health which allows users to search clinical trials taking place in the US and abroad
ECRIN (European Clinical Research Infrastructures Network)
www.ecrin.org
The European Clinical Research Infrastructures Network (ECRIN) is a sustainable, not-for-profit infrastructure supporting multinational clinical research projects in Europe.
EFGCP (European Forum for Good Clinical Practice)
www.efgcp.be
Is a non-profit organisation established by and for individuals with a professional involvement in the conduct of biomedical research. Its purpose is to promote good clinical practice and encourage the practice of common, high-quality standards in all stages of biomedical research throughout Europe.
EFPIA (European Federation of Pharmaceutical companies and Associations)
www.efpia.org
Represents 31 national associations and 40 leading pharmaceutical companies operating in Europe.
EGAN (European Genetic Alliances Network)
www.egan.eu
Patients Network for Medical Research and Health - is a dynamic collaboration of patient organisations that work together because they recognize the value of their involvement in genetics, genomics and medical biotechnology for the prevention and treatment of genetic, multifactorial and congenital disorders.
EMA (European Medicines Agency)
www.ema.europa.eu
Agency responsible for the scientific evaluation of medicines developed by pharmaceutical companies for use in the European Union.
EPF (European Patient's Forum)
www.eu-patient.eu
EPF is the umbrella organisation of pan-European patient organisations active in the field of European public health and health advocacy.
EPPOSI (European Platform for Patients' Organisations, Science and Industry)
www.epposi.org
Founded in 1994, EPPOSI is an independent, not?for?profit, partnership-based multi?stakeholder think tank based in Brussels, Belgium, committed to making the EU?2020 strategic vision work through the health and well being of its citizens.
EU Clinical Trials Register
www.clinicaltrialsregister.eu
Public access database of clinical trials taking place in Europe which also contains a list of sponsor contact information.
The International Alliance of Patient Organisations (IAPO)
www.patientsorganizations.org/searchgroup.pl
The IAPO is a global alliance representing patient organisations all over the world across different conditions and has a searchable global directory.
Orphanet
www.orpha.net
Orphanet includes a Professional Encyclopaedia, which is expert-authored and peer-reviewed, a Patient Encyclopaedia and a Directory of expert Services. This Directory includes information on relevant centres of expertise, clinical laboratories, research activities and patient organisations.
RESPECT
www.respectproject.org
The RESPECT project was funded by the European Commission’s Information Society Technologies (IST) Programme, to draw up professional and ethical guidelines for the conduct of socio-economic research.
Roche
www.roche.com
International research-focused healthcare company that produces Pharmaceuticals, solutions for diagnostics and products for researchers.
World Medical Association
www.wma.net
The purpose of the World Medical Association is to achieve the highest international standards in Medical Education, Medical Science, Medical Art and Medical Ethics, and Health Care for all people in the world.