Start-up workshop
Patients Partnering in Clinical Research,
held on 11th of June 2009, Marivaux Hotel Congress & Seminar Centre, Brussels, Belgium
Download the full workshop report here.
Click on the presentation title to download a Pdf version.
Programme
Cor Oosterwijk, Project Coordinator, VSOP, The Netherlands
- Plenary Session 1 - Best Practices of Patient Involvement in Clinical Trials
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Results of the PatientPartner survey: Inventory of the existing views, needs, practices and experiences of patients; Kim Wever, PatientPartner Project Officer, VSOP, The Netherlands
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Stakeholders’ viewpoints – The Investigator’s perspective; Dr Sue Pavitt, Clinical Trials Research Unit, University of Leeds, United Kingdom
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Stakeholders’ viewpoints – The Patient’s perspective; Stephan Dressler, EATG, Germany
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- Plenary Session 2 - How patient involvement can change the clinical trials of the future
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European Network of Patients Partnering in Clinical Research (ENPCR); Tsveta Schyns, EGAN, Austria
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Data- & biobanking and patient registries; Serge Braun, AFM, France
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Communication and training of the stakeholders as prerequisite for successful clinical trials; Ingrid Klingmann, EFGCP, Belgium
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Patients’ role in competent authorities; Isabelle Moulon, EMEA
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Clinical Trials with Children; Jennifer Newman, MCRN, United Kingdom
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- Break-out sessions
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Identifying Differences & Similarities
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Defining Topics for the PatientPartner Regional Workshops
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End of workshop