North-Western European Regional Workshop
Defining needs and means to increase better collaboration between Patients, Patient Organisations and Other Clinical Trial Stakeholders
held on 12th and 13th of October 2009, in Central Hall Westminster, London
Download the full workshop report here
Click on the Presentation title to download a Pdf version
Programme - Day 1
Cor Oosterwijk, VSOP, PatientPartner Coordinator, The Netherlands
Peter Knight, RCP, United Kingdom
-
Plenary Session 1 - Clinical Trials and Patients Today
-
PatientPartner Survey: Regional Results; Kim Wever, VSOP, PatientPartner Officer, The Netherlands
-
Why is Partnering in Clinical Trials Important?; Ingrid Klingmann, EFGCP, Belgium
-
How do Patient Organisations and Patients Find Out About Clinical Trials?; Stephan Dressler, EATG, Germany
-
Charters of Patients’ Rights; Ariadne Stamatopoulou, GIG, United Kingdom
-
Discussion
-
-
Break-out Session A - Working Together Towards an Ideal World
-
Plenary Session 2 - What Does the Ideal World Look Like?
-
Reports from the Break-out Session A; Rapporteurs of the Break-out Session A
-
Discussion
-
-
NHS Plenary Session - Patient and Public Engagement Strategy for the Research Capability Programme
- Use of Patient Data: Exploring Public Participation in Research; Maria von Hildebrand, RCP, United Kingdom, Rupert Whitaker, Tuke Institute, United Kingdom
-
Presentation of Day 2 Programme; Cor Oosterwijk, VSOP, PatientPartner Coordinator, The Netherlands
Programme - Day 2
-
Break-out Session B - What do the Stakeholders Need to Know to Fulfil their Roles in the Ideal World?
-
Plenary Session 3 - Stakeholders’ Deal Towards the Ideal World
-
Reports from the Break-out Session B; Rapporteurs of the Break-out Session B
-
Deal-making process: based on the outcomes of the Break-out Sessions A and B, discussion on what the stakeholders would be willing to do in order to achieve ideal partnerships; Chairs of the Break-out Sessions A and B
-
-
Who Sees What? discussion game showcase
-
Break-out Session C - Achieving the Deal: Who Needs to Do What?
-
Plenary Session 4 - Achieving the Deal: Who Needs to Do What?
-
Reports from the Break-out Session C; Rapporteurs of the Break-out Session C
-
Discussion, summary and action plan in sight of the PatientPartner Central Final
Workshop
-