Central-Eastern European Workshop
Defining needs and means for more partnership between Patients, Patient Organisations and Other Clinical Trial Stakeholders
held on 30th November and 1st December 2009, Budapest
Download the full workshop report here
Click on Presentation title to download a Pdf version
Programme
- Opening and Welcome; Cor Oosterwijk, VSOP, PatientPartner Coordinator, The Netherlands
- Plenary Session 1 - Clinical Trials and Patients Today
-
Why is Partnering in Clinical Trials Important?; Ingrid Klingmann, EFGCP, Belgium
-
PatientPartner Project: Presentation and Regional Survey Results; Kim Wever, VSOP, PatientPartner Officer, The Netherlands
-
Charters of Patients’ Rights; Ariadne Stamatopoulou, Genetic Alliance UK, United Kingdom
-
How do Patient Organisations and Patients Find Out About Clinical Trials?; Stephan Dressler, EATG, Germany
-
-
Discussion: Why is it Difficult for Patients to Participate in Clinical Research – Share your Experience
- Break-out Session A - Working Together Towards an Ideal World in Central-Eastern Europe
- Plenary Session 2 - What Does the Ideal World Look Like in Central-Eastern Europe?
-
Plenary Debate on the Working Groups outcomes; Facilitators of the Break-out Session A
-
Summary; Ingrid Klingmann, EFGCP, Belgium
-
End of Day 1
- Break-out Session B - What do the Stakeholders Need to Know to Fulfil their Roles in the Central?Eastern European Multi-Stakeholder Ideal World?
- Plenary Session 3 - Actions towards achieving the Ideal World
-
Reports from the Break?out Session B; Facilitators of the Break-out Session B
-
Multi-stakeholder table discussions: Actions to overcome the hurdles; Facilitators from the PatientPartner Project Team
-
- Plenary Session 4 - What needs to be done to achieve the Ideal World?
-
Report from the Multi-stakeholder discussions; Facilitators from the Multi-Stakeholder Table Discussions
-
Prioritisation of the Action Points
-
Plenary Discussion: Summary and action plan in sight of the Final PatientPartner Workshop
-
- Summary and closure