• Interviews
• Survey - Patient Organisations
  • Executive Summary
  • Introduction - P.O
  • Methodology - P.O
  • Results - P.O
    • P.O. as research subject
    • P.O. as information provider
    • P.O. as advisor
    • P.O. as reviewer
    • P.O. as co-researcher
    • P.O. as driving force
    • P.O. and clinical trials with children
    • P.O. biobanking and patient registries
    • P.O. involvement other clinical research
  • With thanks to
  • Conclusion - P.O
• Survey - Pharmaceutical Industry
• Workshops

Home > The Project > Survey - Patient Organisations > Results - P.O

Overall Results

• 205 Patient organisations out of the contacted 12000 nationally active patient organisations participated in the survey. 
• The respondents represented 30 countries from across Europe.
• 50% of the responding patient organisations represented a common condition and 50% a rare condition.
• The majority of respondents were either president (33%), chair (18%) or board member (14%) of the patient organisation they represented.
• 11% of all respondents had no experience in being involved, on any level, in clinical trials and research.
• 79% of all respondents have been/is involved in clinical trials and research on more than one level.
• A quarter of all responding patient organisations have been involved as research subjects, as advisors, as reviewers, as co-researchers or driving forces.
• Half of all respondents are actively involved in clinical trials and research through the providing of information. 

For full detailed results look under the different tabs or download the complete report here

• P.O. as driving force

• P.O. as co-researcher

• P.O. as reviewer

• P.O. as advisor

• P.O. as information provider

• P.O. as research subject

Directly to

• Policy Recommendations
• Ethical Principles
• Memorandum of Understanding
• Patient Organisation guide
• Sponsor's guide

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