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Patient Involvement in Clinical Research

A guide for Patient Organisations and Patient Representatives

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PatientPartner produced a set of guides for both Patient Organisations, and Sponsors and Investigators of research.

Here you are able to access the Patient Organisation and Patient Representative's guide to meaningful patient involvement in clinical research.

This guide provides patient organisations and patient representatives with the information and tools necessary for them to develop meaningiful partnerships with other stakeholders involved in clinical research.

The guide explains the clinical trial process, the stages of research in which patients can get involved as well as the different types of involvement. The guide also covers how to find clinical trials and who to get involved with. A set of ethical principles was also included however these have been revised and amended. The final  version is accessible here.

The guide also covers different areas of research such as Biobanking, Registries and Paediatric research.


To Download a PDF of the guide please click here 

If you would like to be sent a hard copy of the guide please contact:

VSOP, Koninginnelaan 23, 3762 DA SOEST, THE NETHERLANDS

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