• Home
• About PatientPartner
  • Project Details
  • Project Description
  • Project Objectives
  • Project Partners
    • EFGCP
    • EGAN
    • Genetic Alliance UK
    • VSOP
• The Project
  • Interviews
  • Survey - Patient Organisations
    • Executive Summary
    • Introduction - P.O
    • Methodology - P.O
    • Results - P.O
      • P.O. as research subject
      • P.O. as information provider
      • P.O. as advisor
      • P.O. as reviewer
      • P.O. as co-researcher
      • P.O. as driving force
      • P.O. and clinical trials with children
      • P.O. biobanking and patient registries
      • P.O. involvement other clinical research
    • With thanks to
    • Conclusion - P.O
  • Survey - Pharmaceutical Industry
    • Methodology
    • Results
    • Conclusion
  • Workshops
    • Start-up workshop
    • NW Workshop
    • CE Workshop
    • S Workshop
    • Final Workshop
• Project Outcomes
  • Policy Recommendations
  • Ethical Principles
  • Patient Organisation guide
  • Sponsor's guide
• Resources
  • Introduction
  • Background of Patient Involvement
    • References and Summaries
  • Being a Research Subject
    • References and Summaries
  • Active involvement in the process
    • References and Summaries
  • Good Practices
    • References and Summaries
  • Involvement in Ethics
    • References and Summaries
  • Biobanking
    • References and Summaries
  • Paediatric Research
    • References and Summaries
  • Conclusion
  • References
• PP Network
• Useful Links
  • Northern and Western Europe
  • Central and Eastern Europe
  • Southern Europe
  • Europe-wide and International
• Contact

Project Outcomes